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Recieved from Marilyn Fender, CNM Communications, posted to forum by RTF Moderator Vicky Trainor.

Subject: CNM News

Test Kits continue to come in regularly. Litters as well as individual dogs are being tested. By the end of 2007 we will be providing some public reports related to the samples that have arrived. Numbers tested and other information will be provided. It will be published in a variety of places.

There is exploration being done as to how long the CNM mutation has been in existence. When there is some interesting data regarding the history, it will be published.

I receive regular inquiries as to whether there is any relationship between EIC and CNM –-- as some people have started the rumor that there is. Everything indicates that they are two very separate and unique diseases. The dog is affected in a much different way and the age of when it appears is significantly different. EIC appears periodically in a dog whereas CNM is there for the entire life of the dog although the physical symptoms are not clearly identified until the pup is 14 to 24 weeks old.

There is no relation to cardio-myopathy as that is also a very different kind of myopathy.
There are many diseases that have myopathy in their name, but that does not mean that the diseases share genetics or physical characteristics.

There is no medication that has shown to be in any way useful for CNM, despite some individuals stating that there are some possibilities in their articles that we have not had the ability to edit before publication. The Alfort laboratory is presently working on understanding the molecular processes that are affected as a consequence of the mutation in the PTPLA gene. It seems that it is part of a very sophisticated mechanism of cell protection. Once the exact function of the gene will be understood, that would define new molecular targets for innovative treatments. This is a long-term issue of ongoing their research and their hope is to be able to use such treatments for humans and dogs.

We have found that in some cases poor information has been published on CNM. We cannot control what others mistakenly say about the disease of CNM. Please check with us if you hear or read something from another source other than the CNM web site. Even if the article refers to the CNM Project or the staff, it does not mean that all items in the article are accurate, since the CNM Project did not have any final editing options.

If you have questions about CNM, the best thing to do is to write [email protected] . Do not feel you are bothering anyone by sending an email with a question. It is the best place to get an accurate answer. Please email [email protected] directly.

Best Regards,

Marilyn Fender, Communications Coordinator CNM Project.
[email protected]
 

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Recieved from Marilyn Fender, CNM Communications, posted to forum by RTF Moderator Vicky Trainor.


Subject: CNM Update Related to Web Site Access

Let me apologize for the inconsistency in accessing the web site. It is down for the weekend due to the atmospheric control systems surrounding the server having a part failure. The part is on order and everything should be fixed in a few days. The weekend is causing a slow arrival of what is needed. The Alfort school has been very unlucky these last weeks with many improbable technical problems. They are fully conscious that it has caused many problems and are actively working on an efficient alternative solution. The server and the network physical system is going to receive major updating over the next months. This should resolve the periodic down times we have been experiencing. Thank you for your patience.

Tests that have arrived are not affected by this problem. They are easily done within schedule, or ahead of schedule. If your test has been put in the mail, do not worry that anything will be delayed due to the site being under repair. If you already have an e-form, you then just use it as usual as there is no delay in processing.

If you have an emergency analysis needed during this period of repair and you do not yet have an e-form, please write me directly at [email protected] for help. This is only for emergencies such as purchase or breeding in the next month.

Email me directly at [email protected] rather than sending comments to my mail box in the RTF site system as that will provide a slower response.

Thank you for your patience.

Best Regards,

Marilyn Fender, Communications Coordinator CNM Project
[email protected]
 

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Recieved from Marilyn Fender, CNM Communications, posted to forum by RTF Moderator Vicky Trainor.


Subject: Subject: CNM Affected Pups

Next summer we plan to add a section in the web site that includes comments from owners that are raising CNM affected pups or have experienced having a litter with CNM affected pups.

If someone has some experiences they are willing to share, it would be appreciated. We feel that if people know what a difficult experience it is to have a litter with affected pups or to find they have unknowingly brought one into their family, it will encourage more to test their dogs before breeding.

Please contact me at [email protected] if you have something you would be willing to share.

Thank you for your help.

Best Regards,

Marilyn Fender, Communications Coordinator CNM Project
[email protected]
 
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